• MJC RUD

 


SAVE THE DATE! The next ECRD will be held on 3 & 4 June 2026 in Prague and will be titled “Rare Diseases in a Changing & Competitive Europe: Shaping policies to address the unmet needs of people living with rare diseases”.  
The European Conference on Rare Diseases & Orphan Products (ECRD) is the largest patient-led policy-shaping event on rare diseases in Europe. 

By bringing together people living with rare diseases and patient advocates alongside policymakers, healthcare industry representatives, clinicians, regulators, and Member State officials, EURORDIS leverages the strength of this unique network to advance goal-driven policies that improve the lives of people living with a rare disease and their families. 

ECRD 2026 is expected to unite over 500 participants in Prague, with an additional 300+ joining online. Thanks to its hybrid format, the conference will provide an unparalleled platform for connection and collaboration, enabling participants across the rare disease community to exchange knowledge, share experiences, and build partnerships.

 

Call for Poster Abstracts Submissions 

Open to patient groups, academics, healthcare professionals and all other interested parties having conducted research or studies on rare diseases or public health projects. 

Please ensure that any promotion includes a link to the webpage where the submission form is located (https://www.rare-diseases.eu/posters/). Detailed information about guidelines and criteria can also be found on the same page.

 

Dear Visitors,

 

Rare diseases are conditions that negatively affect people’s quality of life, some may lead to death, and impose a very high financial and emotional burden. One of the most critical steps in the management of these diseases is accurate medical diagnosis and appropriate clinical approaches. We are now at a stage where the diagnoses of common diseases observed in every specialty need to be re-evaluated, and outdated habits must be abandoned. This is because etiological investigations have become much more accessible; however, integrating them into daily medical practice requires determination. Treatments applied without investigating the etiology may provide temporary benefits, but for an effective treatment plan, identifying the underlying etiology and the entire biological mechanism is essential. This is the key to successfully treating patients, preventing diseases in their families, and ensuring a high quality of life.
MJC-RUD is a committee that works to define educational content in this field, develop new strategies in collaboration with other medical specialties, and establish a certified professional community. Although it operates within the framework of the European Union, through established international collaborations it effectively functions on a global scale. We sincerely wish for all physicians and healthcare professionals to stand shoulder to shoulder with us and with patients in this endeavor, and to share their innovative ideas with us.

 



               Serdar Ceylaner
                           president

 

 

You shall not pass!